BEYOND PASSIVE INCLUSION

Raising twins where one is on the autism spectrum and the other is not has given me a unique perspective, one that many parents may not experience. I’ve found myself navigating two distinct worlds simultaneously, often witnessing the stark contrast between them. When entering spaces that claim to be accommodating, it quickly becomes apparent whether they truly are. Vague reassurances like, "Yeah, it shouldn't be a problem; she can come," or "It's going to be fine," never put me at ease. Families like ours need specifics: How exactly will she "be fine"? What measures have you taken to ensure that there won't "be a problem"? This brings to light an important issue that I call "passive inclusion."

Inclusion goes beyond a mere catchphrase. Inclusion for families whose children fall on the autistic spectrum involves entering a place where their particular needs are valued and recognized. Sadly, passive inclusion where little thought is given to the activities and surroundings often leaves these families feeling isolated or not welcomed. Real inclusion calls for intentionality, empathy, and a real attempt to relate to people who see the world differently.

Knowing Autism: Entering Our World

The notion that autism is not a condition to be shaped into the pattern of normal experiences defines the essence of intentional inclusion. Rather than trying to force us into your world, understanding autism requires you to become a part of ours.

It's helpful to gain insight into the autistic mind by listening to autistic people who are also their own advocates. Invest some time in getting to know them as fellow individuals whose preferences must be respected.

From this vantage point, the focus shifts from passive acceptance to proactive engagement. It challenges teachers, caregivers, and community members to really engage with those on the spectrum going beyond simple inclusion. This approach asks one to pay attention to self-advocates, value their unique experiences, and deliberately strive to understand how they see and interact with the world.

Clearing Pathways for Participation

Being intentional about inclusion involves purposeful actions. It entails identifying and eliminating barriers to ensure that everyone can participate fully. This underscores the importance of intentionally creating environments that are welcoming and accessible, especially for individuals with autism. So, how can family members, friends, and caregivers put this into practice on a daily basis? Here are five practical strategies to move beyond mere inclusion and establish environments where everyone can thrive:

1.       Investigate Autism

Utilize reliable sources and self-advocates to help you to grasp it. Hear the voices of people who live daily with autism. Their observations will help you design areas that really satisfy their demands.

2.       Modify Your surroundings

Make sensory and physical changes to your house, classroom, or neighborhood gathering place. This can call for creating calm spaces, lowering noise levels, or include sensory-friendly objects. Comfort and involvement can be much improved by these few adjustments.

3.       Promote Involvement 

Every child will not wish to participate in events the same way. Give them choices so they may engage in a way that seems safe and comfortable. Provide substitutes for group projects that can be too demanding, for instance, solo assignments or smaller groups. Many individuals with autism may find it difficult to grasp or react to typical social signals.

4.       Communicate

Determine their communication preferences and adopt those methods. Communicate clearly, directly, and allow them sufficient time to process the information and respond. This creates a more relaxed and inclusive communication environment.

5.       Build Real Connections

Take the time to understand children with autism as individuals rather than simply defining them by their diagnosis. Acknowledge their achievements, support their feelings, and assist them during challenging moments.

Final Thought

To achieve active inclusion, it is necessary to put in effort, show empathy, and be open to personal growth. By actively fostering inclusion and making practical adaptations, we can create spaces where every child, regardless of their background, truly feels accepted, valued, and supported. Let's not just invite inclusion, but also actively participate in it, showing kindness and consideration to those for whom inclusion is particularly significant.